It’s a good place to be. The staff are amazing here. You’re anxious about being on your own at the minute, you want somebody with you. The fact that we can stay over is really good. It’s such a different place to being in a hospital, it’s very calm. You can have what you want, when you want.
You were reluctant to come; you didn’t want to get out of your house did you? You wanted to be at home and you still want to be at home. The eventual aim is to get you home but you needed to come here and get things sorted.
It’s great being at home and we’ve got nurses available but you’ve got to ring them and it can take an hour for them to come out. And it’s us making those decisions, and we shouldn’t have to make them for her, it should be nurses and doctors and so we can just enjoy being together.
Sadly, Hilary died in the weeks after having her photograph taken. We are so grateful to Susanne and all of Hilary’s family for allowing us to share her story.